Helpful Links

Because some of the links below will take you to web sites not owned or operated by ACPMP, ACPMP is not responsible for the information they provide.

If you would like to report an issue with one of these links, please email us at info@acpmp.org.

New Patient Information

• New Patient Guide: if you've just been diagnosed, here are some steps you can take to learn more about appendix cancer and PMP to guide your decision-making and care. Click here to download our New Patient Guide.
• Appendix Cancer PMP Fact Sheet: a visual resource sheet where you can learn more about appendix cancer and PMP in a concise and straight-forward way. Click here to download our Educational Graphic.
• ACPMP "Find a Specialist" Page: how to find an expert in the treatment of pseudomyxoma peritonei, appendix cancer and other peritoneal surface malignancies.

Patient Educational Resources

• Frequently asked questions about Appendix Cancer and PMP.
• ACPMP’s video library
• Cancer.net Appendix Cancer Guide: informative and accurate information about appendix cancer from the American Society of Clinical Oncology (ASCO).

Clinical Trials/Research

In addition to ACPMP's Clinical Trial Database, see additional resources below:

• Clinical Trials Information for Patients and Caregivers from the National Cancer Institute.
• How to Join a Clinical Trial Cancer Details Checklist: Checklist from the National Cancer Institute to help determine which clinical trials you may be eligible to join.
• Medicare & Clinical Research Studies: Guide to clinical research studies while on Medicare from Centers for Medicare & Medicaid Services.

Palliative Care Resources

• GetPalliativeCare.org: provided by the Center to Advance Palliative Care (CAPC)

Patient Support Forums

• Inspire Support Community: ACPMP's support community, providing private online support for patients and caregivers.
• Facebook PMP/Appendix Cancer Support Group: an active, patient-run, moderated private support forum hosted on Facebook for patients and primary caregivers. Be sure to answer the questions when requesting to join the group.
• RareConnect Pseudomyxoma Peritonei Community: a private support forum which offers translation services in English, Spanish, French, German, Italian, and many other languages, offered in partnership with NORD and Eurordis, with the ACPMP Research Foundation as a founding host member.
• AppendiCure Facebook Group - A private forum hosted on Facebook dedicated to educating patients and caregivers about new research and treatments for Appendix Cancer.

Appendix Cancer PMP Patient Support Organizations

• PMP Pals Network: providing caregiver and survivor support through a mentoring network system.
• Appendix Cancer Connection: patient-run site with detailed information on appendix cancer, PMP, and PSM.
• Pseudomyxoma Survivor: UK-based organization offering practical information and support for patients and caregivers.

Appendix Cancer PMP Research

• ACPMP’s published research library.
• PubMed: National Institute of Health's medical database, where you can search for appendix cancer and PMP-related research articles.
• Thomas McAvoy's research involving possible links between bacteria and cancer of the appendix.

Financial and Legal Assistance

• US National Institutes of Health: financial aid for medical treatment.
  
• Genetic and Rare Diseases Information Center - tips for finding financial aid.
• Cancer Financial Assistance Coalition
• Triage Cancer - financial and legal assistance for cancer patients.
• Financial Assistance for Cancer Patients
• Legal Resources for Cancer Patients
• Lazarex Cancer Foundation: Provides financial assistance navigation, advocacy, outreach and more.

Health Insurance Information

• HealthCare.gov: health insurance options if you are uninsured.
• The Insurance Warrior, Laurie Todd: a resource for appendix cancer and PMP patients seeking treatment and struggling with their health insurance provider.
• Patient Advocate Organization: Provides patient resources to help patients navigate health insurance, lead their healthcare and more.

Genomic Tumor Testing

• Foundation Medicine
• Caris Life Sciences
• Tempus

Appendiceal Neuroendocrine Tumor Information

• Neuroendocrine Research Foundation
• Carcinoid Cancer Foundation

Nutrition Resources

• Savor Health Intelligent Nutrition Assistant (INA) - free personalized online nutrition assistance.

Air Transportation Resources

• Miracle Flights
• Air Charity Network
• Corporate Angel Network
• PALS Patient Airlift Services
• Southwest Airlines Medical Transportation
• Angel Flight East