New Patient Guide

ACPMP Research Foundation’s mission is to fund research to find a cure for appendix cancer and pseudomyxoma peritonei and to educate physicians and patients about these diseases.

As a new patient, here are some steps you can take right away:

FIND A SPECIALIST

• It is highly recommended that appendix cancer and PMP patients seek out a specialist who deals with these conditions on a regular basis before commencing treatment; visit Selecting Your Specialist to find a specialist near you.
• Visit Questions for Specialists to figure out what to ask at your next appointment.

CONNECT WITH OTHERS

• Join the very active Facebook PMP Appendix Cancer Support Group or ACPMP’s Inspire Support Community to connect with other patients.
• View ACPMP's Helpful Links page to find other resources for assistance.

LEARN ABOUT AC/PMP

• Learn the facts about appendix cancer and PMP, particularly about diagnosis and treatment.  YOU are your own best advocate!
• Check out videos of our past educational events to learn more about these diseases and optimal treatment.
• Read NORD's reports on appendix cancer, goblet cell carcinoid tumors, and pseudomyxoma peritonei.
• Review ACPMP's list of recent research relating to appendix cancer and PMP.

PARTICIPATE IN RESEARCH

• Review ACPMP's updated list of active clinical trials and discuss them with your physician.
• If you have an upcoming surgery or ascites drain, donate your excess tumor tissue to accelerate research by filling out a simple online consent form—Pattern.org takes care of the rest.  ACPMP has partnered with Pattern.org, to participate in the the Cancer Cell Line Project at the Broad Institute of MIT and Harvard, with the goal of creating cell lines to speed the development of new therapies for appendix cancer and PMP.
• Ask your physician about genetic and molecular profiling of your tumor to guide treatment and determine eligibility for clinical trials.