Helpful Links

While we hope the ACPMP Research Foundation provides you with much of the information you are looking for, there are a number of other good resources available related to Appendix Cancer and PMP.

Because some of the links below will take you to web sites not owned or operated by ACPMP, ACPMP is not responsible for the information they provide.

If you would like to report an issue with one of these links, please email us at


New Patient Information


Patient Educational Resources


Patient Support Forums

  • Patient Advisory Council: ACPMP's patient advocate volunteer group works alongside the ACPMP Research Foundation to help with our mission. PAC members provide perspectives on their patient/caregiver experience, provide feedback, disseminate information to the appendix cancer/PMP community, organize local patient group meetings consisting of virtual or in‐person gatherings and more. If you’d like to contact any of our 2022 members directly, send us an email at and we will connect you!
  • Inspire Support Community: ACPMP's support community, providing private online support for patients and caregivers.
  • Facebook PMP/Appendix Cancer Support Group: an active, patient-run, moderated private support forum hosted on Facebook for patients and primary caregivers. Be sure to answer the questions when requesting to join the group.
  • RareConnect Pseudomyxoma Peritonei Community: a private support forum which offers translation services in English, Spanish, French, German, Italian, and many other languages, offered in partnership with NORD and Eurordis, with the ACPMP Research Foundation as a founding host member.


Appendix Cancer PMP Patient Support Organizations

  • PMP Pals Network: providing caregiver and survivor support through a mentoring network system.
  • Appendix Cancer Connection: patient-run site with detailed information on appendix cancer, PMP, and PSM.
  • Pseudomyxoma Survivor: UK-based organization offering practical information and support for patients and caregivers.


Appendix Cancer PMP Research


Financial and Legal Assistance


Health Insurance Information


Genomic Tumor Testing


Appendiceal Neuroendocrine Tumor Information


Nutrition Resources


Air Transportation Resources

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