Helpful Links

While we hope the ACPMP Research Foundation provides you with much of the information you are looking for, there are a number of other good resources available related to Appendix Cancer and PMP.

Because some of the links below will take you to web sites not owned or operated by ACPMP, ACPMP is not responsible for the information they provide.

If you would like to report an issue with one of these links, please email us at info@acpmp.org.

New Patient Guide Page: If you've just been diagnosed, here are some steps you can take to learn more about appendix cancer and/or PMP to guide your decision-making and care. Click here to download our New Patient Guide.

ACPMP "Find a Specialist" Page: Our advice on how to find an expert in the treatment of pseudomyxoma peritonei, appendix cancer and other peritoneal surface malignancies.

Inspire Support Community: Our support group, providing private online support for patients and caregivers.

Facebook PMP/Appendix Cancer Support Group: An active, patient-run, moderated private support forum hosted on Facebook for patients and primary caregivers that includes a member-generated specialist list. *Be sure to answer the question when requesting to join the group.

RareConnect Pseudomyxoma Peritonei Community: a private support forum which offers translation services in English, Spanish, French, German and Italian, offered in partnership with NORD and Eurordis, and the ACPMP Research Foundation as one of its founding host members.

PMP Pals Network: Providing caregiver and survivor support through a mentoring network system, including a specialist list.

Appendix Cancer Connection: A great site with a lot of detailed information on appendix cancer, PMP, and PSM including a specialist list.

Pseudomyxoma Survivor: UK-based charity offering practical information and support for patients and caregivers, including a specialist list.

American Society for Peritoneal Surface Malignancies (ASPSM): this organization lists several recognized US and International experts in the treatment of PMP, PSM and appendix cancer as members.

Watch a HIPEC procedure: Edward Levine, MD one of the ACPMP grant recipients, performs a live cytoreduction and HIPEC procedure. (Warning: may be too graphic for some viewers)

Review information about Dr. Thomas McAvoy's research involving possible links between bacteria and cancer of the appendix.

Cancer.net Appendix Cancer Guide: Informative and accurate information about appendix cancer from the American Society of Clinical Oncology (ASCO).

Neuroendocrine Research Foundation and Carcinoid Cancer Foundation: Good sources of information on appendiceal neuroendocrine (carcinoid) tumors.

The Insurance Warrior, Laurie Todd: A resource for PMP patients seeking treatment and struggling with their health insurance carriers.

Triage Cancer provides legal and practical resources on employment, health insurance, and other issues that may impact individuals diagnosed with cancer and their caregivers.

PubMed: National Institute of Health's medical database, where you can search for PMP-related research articles.

HealthCare.Gov: Check this website for health insurance options if you are uninsured.

Miracle FlightsPALS Patient Airlift Services, and Southwest Airlines provide air transportation for medical care.

Foundation MedicineCaris Life Sciences, and Tempus offer genomic tumor profiling to help match patients to targeted therpaies, immunotherapy options, and clinical trials and offer patient financial assistance services.