Helpful Links

New Patient Information

New Patient Guide: if you've just been diagnosed, here are some steps you can take to learn more about appendix cancer and PMP to guide your decision-making and care. Click here to download our New Patient Guide.
Appendix Cancer PMP Fact Sheet: a visual resource sheet where you can learn more about appendix cancer and PMP in a concise and straight-forward way. Click here to download our Educational Graphic.
ACPMP "Find a Specialist" Page: how to find an expert in the treatment of pseudomyxoma peritonei, appendix cancer and other peritoneal surface malignancies.

Patient Educational Resources

Frequently asked questions about Appendix Cancer and PMP.
ACPMP’s video library
Cancer.net Appendix Cancer Guide: informative and accurate information about appendix cancer from the American Society of Clinical Oncology (ASCO).

Clinical Trials/Research

In addition to ACPMP's Clinical Trial Database, see additional resources below:

Clinical Trials Information for Patients and Caregivers from the National Cancer Institute.
How to Join a Clinical Trial Cancer Details Checklist: Checklist from the National Cancer Institute to help determine which clinical trials you may be eligible to join.
Medicare & Clinical Research Studies: Guide to clinical research studies while on Medicare from Centers for Medicare & Medicaid Services.

Palliative Care Resources

Patient Support Forums

Facebook ACPMP Research Foundation Support Group
Inspire Support Community: ACPMP's support community, providing private online support for patients and caregivers.
Facebook PMP/Appendix Cancer Support Group: an active, patient-run, moderated private support forum hosted on Facebook for patients and primary caregivers. Be sure to answer the questions when requesting to join the group.
AppendiCure Facebook Group - A private forum hosted on Facebook dedicated to educating patients and caregivers about new research and treatments for Appendix Cancer.

Appendix Cancer PMP Patient Support Organizations

PMP Pals Network: providing caregiver and survivor support through a mentoring network system.
Pseudomyxoma Survivor: UK-based organization offering practical information and support for patients and caregivers.

Appendix Cancer PMP Research

ACPMP’s published research library.
PubMed: National Institute of Health's medical database, where you can search for appendix cancer and PMP-related research articles.
Thomas McAvoy's research involving possible links between bacteria and cancer of the appendix.

Financial and Legal Assistance

Health Insurance Information

HealthCare.gov: health insurance options if you are uninsured.
The Insurance Warrior, Laurie Todd: a resource for appendix cancer and PMP patients seeking treatment and struggling with their health insurance provider.
Patient Advocate Organization: Provides patient resources to help patients navigate health insurance, lead their healthcare and more.

Genomic Tumor Testing

Appendiceal Neuroendocrine Tumor Information

Nutrition Resources

Wellness & Respite Resources

Sail Beyond Cancer - provides meaningful sailing experiences for individuals diagnosed with cancer, offering a chance to relax, reflect, and connect with loved ones on the water. Their mission is to honor those living with cancer by celebrating life and providing moments of joy and respite during difficult times. Patients, caregivers, and family members can be nominated for a sail in select coastal regions.
Learn more or nominate someone: https://www.sailbeyondcancer.org

Air Transportation Resources