Who we are

The Appendix Cancer PMP Research Foundation (ACPMP) is an IRS-designated 501(c)3 charitable organization (EIN: 26-2890160). The Foundation was created in 2008 by a community of individuals affected by Appendix Cancer, Pseudomyxoma Peritonei (PMP), and related Peritoneal Surface Malignancies (PSM).

Our Mission

The ACPMP Research Foundation is dedicated to:

1. 1. Funding and supporting research to discover new treatments for appendix cancer with the hope of one day finding a cure for all.
   2. Funding and supporting educational programs for health care professionals and patients/caregivers & families to keep current with the evolving science and to increase awareness about this rare cancer.

We want you to feel 100% confident that your donation is secure and will be well-managed. Please view our IRS designation letter, annual filing requirements and standards of conduct on our Donor Confidence page for more information.

Why we do it

• Prior to the formation of the Appendix Cancer PMP Research Foundation, no centralized organization existed dedicated to raising funds for distribution for PMP and appendix cancer research in an objective way.
• Private donations for PMP and appendix cancer research were primarily made to individual doctors rather than towards competitive, RFP-driven funding based on the quality of the science.
• From the patient's perspective, research often appeared to be redundant or theoretical with little coordination between researchers.
• Movement appeared slow to change clinical practice or improve curability.
• The rarity of PMP and appendix cancer translates into minimal government funded research.
• PMP and appendix cancer patients continue to be misdiagnosed and/or not offered the optimum treatment for these diseases.

How we do it

• All of our funding comes from:
  • individual donations
  • donations made in honor or memory of loved ones
  • fundraisers created by patients and their friends and families. Want to help? Click here to find out how!
  • Donor-Advised Funds

Major goals

• Establish the first centralized charitable organization to fund PMP and appendix cancer research (goal achieved, July 2008).
• Raise $100,000 to award our first grant in 2009 (goal achieved, November 2009: more details available at Research Grants Awarded).
• Create and maintain a short list of priority research that will produce near-term results in improving the quality of life and curability of PMP and appendix cancer patients.
• Play a leading role in the dissemination of accurate information regarding PMP and appendix cancer both to the patient and to medical communities.
• Raise a minimum of $1 million to fund promising research within 3-5 years (goal achieved, December 2013).
• Help researchers find a cure for PMP and appendix cancer.