ACPMP Educational Videos

The Wake Forest Regional Session was held after the General Session of the Appendix Cancer Survivorship Symposium on October 15, 2021 virtually via Zoom. The Session included Welcome and Introductions: Karolyn Lewandowski, Chief Operating Officer & General Counsel – ACPMP Research Foundation. Introduction: HIPEC program: Cheryl Sizer, PA-C – Wake Forest. Nutrition for AC/HIPEC patients: Monica Moorefield, RD, LDN. Patient Experience: Melvin Evans – Wake Forest patient. Navigation – GI navigator intro, barriers to care, financial issues, resources: Rebecca Harmon, RN, BSN, Oncology Nurse Navigator. Health Maintenance & COVID impact to AC/HIPEC patients: Stephanie A. Thornton, FNP-C, MSN.

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In conjunction with Rare Disease Day, February 28th, 2021, ACPMP is excited to introduce Dr. Kostas Votanopoulos, leader of the WFORCE program and ACPMP Medical Advisory Board member, sharing updates about exciting research!

ACPMP is proud to be partnering with researchers and physicians to be making great strides with exciting developments that will hopefully one day lead to that cure. Learn more at acpmp.org/rare-disease-day-2021

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Andreana N. Holowatyj, PhD, MS, Assistant Professor of Medicine and Cancer Biology, Vanderbilt University Medical Center presented “Appendix Cancer in Young Adults: A Distinct Disease Burden” via Zoom on February 17, 2021.

The objectives of this webinar were to: (1) summarize current literature on the distinct burden of appendix cancer among young patients; (2) understand the context of health disparities within the early-onset appendix cancer population; and (3) broaden knowledge in early-onset appendix cancer and ongoing research.

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Dr. Raoof with City of Hope Cancer Center presented an educational webinar on December 16, 2020, “Regional Therapy for Appendiceal Carcinomatosis: Past, Present, and Future”. This webinar included information about the different types of appendiceal tumors, molecular profiles, therapeutic approaches, and information regarding the first U.S. clinical trial for a new investigational therapy – PIPAC (Pressurized Intraperitoneal Aerosolized Chemotherapy) – for which Dr. Raoof is a co-investigator and that is currently ongoing. The event featured a live Q&A and was hosted by The ACPMP Research Foundation.

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Appendix cancer clinical trials at UCM (Dr. Turaga) (Contact RegionalTherapies@uchospitals.edu for clinical trials at the University of Chicago Medicine.) – Managing cancer and leveraging your team (Emily Fenton, PA) – Identifying the right educational resources (Kevin Swanson) – Patient story (Julia Kearney) – Pre-habilitation and getting stronger for surgery (Jeffrey Whitridge, RD & Maria Alvarado, PT) – Things to know when you have a cancer diagnosis (Enal Hindi, Sandy Clark, Pujitha Kallakuri) – Research & Clinical Trials: Why to be a part of them – Advanced Directives: The importance of having them – Patient Advocacy & being connected

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Wake Forest Baptist Health held a Regional Program at the Appendix Cancer Survivorship Symposium on October 2, 2020 via Zoom. This program was moderated by: Joyce Fenstermaker, Cheryl Sizer, and Stephanie Thornton Agenda: Introduction (HIPEC program): Cheryl Sizer, PA-C Survivorship & Caregiving: Dr. Stacy Wentworth Patient Experiences Related to Survivorship Related to Caregiver Issues Navigation – Barriers to Care, Financial Issues/Suggestions & Resources: Joyce Fenstermaker, RN, BSN, OCN Health Maintenance: Stephanie Thornton, FNP-C, MSN

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University of Utah Huntsman Cancer Institute held a Regional Program at the Appendix Cancer Survivorship Symposium on October 2, 2020 via Zoom. This program was hosted by Lauren Smith from the ACPMP Research Foundation and Dr. Laura Lambert from the University of Utah Huntsman Cancer Institute. The program featured a story from a young patient and his family as well as an open discussion and Q&A with Dr. Heloisa Soares, Dr. Kajsa Affolter, and Lawrence Marsco.

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Katie Duckworth, PhD at Wake Forest Health – presents “Providing Care Throughout Intensive Interventions: A Close Look at Caregiver Wellbeing” at the Appendix Cancer Survivorship Symposium

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Deborah Shelton, Medical Liaison, ACPMP Research Foundation presents Updates from ACPMP Sponsor and New Patient Registry at the Appendix Cancer Survivorship Symposium

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Caio Rocha Lima, MD, MS, Professor, Hematology and Oncology at Wake Forest Health presents “What’s New in Chemotherapy & Immunotherapy for Appendix Cancer” at the Appendix Cancer Survivorship Symposium

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Milica Medved and Samuel Armato, Radiology – U of Chicago Cancer Center present “What’s New in Imaging for Appendix Cancer” at the Appendix Cancer Survivorship Symposium

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