Rare Disease Day 2021

Rare Disease Day is a global day of awareness that celebrates our collective strength. The goal each year is to inform the general public and decision-makers about the life-altering impacts of rare diseases.

Here are some ways you can get involved and help raise awareness of Rare Disease Day and appendix cancer:

1. SPREAD THE WORD.

   • Use the ACPMP Rare Disease Day frame on your Facebook profile picture!
   • Share ACPMP’s social media connect and/or website to get the word out to your friends, family and colleagues!

2. STAY CONNECTED.

   • Follow the ACPMP Research Foundation on Facebook, Instagram & Twitter and join our mailing list to stay up to date with posts about Rare Disease Day!

3. ATTEND. 

   • The ACPMP Research Foundation is also an active and long standing member of the National Organization for Rare Disorders (NORD) and they will be hosting a few virtual events, visit: rarediseaseday.us.
   • Join the virtual “Rare Disease Day at NIH” conference on Monday, March 1st at 4:10pm EST for a discussion on the importance of patient advocacy in driving research progress. Register for free and see the day’s agenda. (Use the hashtag: #RDDNIH)
     • Download the Rare Disease Day at NIH app – search “NIH NCATS Events” in your App Store.

4. VISIT.

   • RareDiseaseDay.org – a central hub for ALL Rare Disease Day events, materials, and more, to help you participate and amplify this global day of awareness.

5. DONATE.

   • All of our funding comes from donations and fundraisers created by patients and their friends and families. Your support makes a difference! Make a direct donation or gift today.
   • Or consider making a contribution through our Rare Disease Day Facebook fundraiser!

6. FUNDRAISE.

   • Interested in spreading social awareness while also fundraising for ACPMP? Use the instructions and tips below to host a Rare Disease Day Facebook Fundraiser for ACPMP! For more information about fundraisers outside of Facebook, please email us at info@acpmp.org.

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