Patient Empowered

 

ACPMP believes in the power of patients to drive research and innovation and effect change.

These patient-driven programs empower patients to participate in research and advocate for their care.

 

Review ACPMP's New Patient Guide: If you've just been diagnosed, review these proactive steps you can take to learn more about appendix cancer and/or PMP to guide your decision-making and care.  

Find a Clinical Trial: ACPMP has created a resource for patients interested in identifying clinical trials that are currently enrolling AC/PMP patients.  This resource provides the ability for a quick glimpse at the baseline information for each trial, and the point of contact to learn more.  ACPMP will update this information on a periodic basis as additional confirmatory information about enrollment status and eligibility criteria is obtained. 

Donate Fresh Tissue for Research: ACPMP has partnered with Pattern.org to empower patients to direct their excess cancer tissue samples to research projects. Initially, samples donated via Pattern.org will be sent to the Broad Institute of MIT and Harvard, where the samples will be used to attempt to develop research models.  If you or a patient you know has an upcoming surgery or ascites drain, visit Pattern.org to learn more about the process of donating tissue to this project.

Participate in the ACPMP Patient Registry: ACPMP is exited to announce the creation of the ACPMP Appendix Cancer Pseudomyxoma Peritonei Patient Registry, a collaborative effort between ACPMP Research Foundation and the National Organization for Rare Disorders (NORD) to study Appendix Cancer and Pseudomyxoma Peritonei.