Rare Disease Day 2/28/19

Did you know that #RareDiseaseDay takes place on the last day of February each year? The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

The zebra is the official symbol of rare diseases in the United States and is noted for its black and white stripes, which are central to its uniqueness. Everyone has his/her own stripes, those characteristics that make each individual distinct. While each of the more than 7,000 rare diseases are unique, there are many commonalities that unite patients, families, caregivers and supporters. In the spirit of raising the profile of the rare disease community at large and celebrating Rare Disease Day, this year NORD is promoting a variety of ways in which individuals, organizations and groups can “show their stripes.”

Here are 5 ways to #ShowYourStripes!

1. Share your story and why Appendix Cancer / PMP matters to you.

2. Wear striped gear (clothing and/or accessories with stripes), take a picture and post on social media using the hashtags#ShowYourStripes #RareDiseaseDay and #ACPMP.