Did you know that #RareDiseaseDay takes place on the last day of February each year? The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
Make an Impact on Rare Disease Day! Show Us Your Stripes!
The zebra is the official symbol of rare diseases in the United States and is noted for its black and white stripes, which are central to its uniqueness. Everyone has his/her own stripes, those characteristics that make each individual distinct. While each of the more than 7,000 rare diseases are unique, there are many commonalities that unite patients, families, caregivers and supporters. In the spirit of raising the profile of the rare disease community at large and celebrating Rare Disease Day, this year NORD is promoting a variety of ways in which individuals, organizations and groups can “show their stripes.”
Here are 5 ways to #ShowYourStripes!
1. Share your story and why Appendix Cancer / PMP matters to you.
2. Wear striped gear (clothing and/or accessories with stripes), take a picture and post on social media using the hashtags#ShowYourStripes #RareDiseaseDay and #ACPMP.
3. Change your profile picture using our Facebook Frame.
4. Attend an advocacy event.
5. Post messages on social media to spread the word about #RareDiseaseDay and Appendix Cancer / PMP!
We hope you will #ShowYourStripes and/or donate today.
Check out our Rare Disease Day Video with Professor Morris of Saint George Hospital in Sydney, Australia presenting their recent Phase 1 investigational clinical trial. Professor Morris and team were awarded an ACPMP research grant for this project in 2016, and we are excited to share this update with you on #RareDiseaseDay!
Your support helps us with our mission to fund promising research to find a cure for Pseudomyxoma Peritonei (PMP), Appendix Cancer, and related Peritoneal Surface Malignancies (PSM), and to fund educational programs for physicians and patients about these diseases. Visit our Donor Confidence page to see where your money is going.
ACPMP has funded $1.1 million in promising research through 23 grants over the past 9 years. Your donation will help fund our next grants in 2019 to find a cure for Appendix Cancer and PMP.
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