Susan Ortega began volunteering with the ACPMP Research Foundation 10 years ago this Spring. Susan currently serves on ACPMP’s Board of Directors as Secretary and is also the IT Director with our volunteer staff. Susan was diagnosed with appendix cancer in 2009. Following a successful CRS/HIPEC surgery, six months later she wanted to get involved with ACPMP. She wanted to...

Check out our other posts: COVID-19 vaccine considerations for appendix cancer and pseudomyxoma peritonei patients Updated resources for appendix cancer and pseudomyxoma peritonei patients regarding COVID-19   What is COVID-19? There are many types of coronaviruses, which can cause different types of viral infections. The type of coronavirus in the news right now is the 2019 Novel Coronavirus (SARS-CoV-2 is...

The Appendix Cancer Pseudomyxoma Peritonei (ACPMP) Research Foundation is pleased to announce the recipients of our 2019 research grant cycle. Thank you as always to our dedicated fundraisers and to the many researchers who applied to our research grant program, and to our supporters—you are our inspiration. With these two grants, ACPMP has now issued $1,300,000 in the form of...

The ACPMP Research Foundation is pleased to announce the election of Deborah Shelton to the ACPMP Board of Directors. Deborah began volunteering for the Foundation in late 2018 as ACPMP’s Medical Liaison following her spouse’s diagnosis. Since joining ACPMP, Deborah has become an active and engaged advocate on behalf of appendix cancer and PMP patients. In particular, Deborah has created a new resource for...

Therese Surges’ world was turned upside down when her husband and love of her life, Keith, was diagnosed with appendiceal adenocarcinoma and PMP in 2010. Therese took this challenge head-on and proceeded to learn everything she could about Keith’s illness to support him in the best possible way. She stood steadfastly by Keith’s side for the next several years: his caregiver, his confidante, his...

ACPMP is very excited to announce the launch of our newly designed website. After six months of hard work, we are delighted to announce the launch of the new and improved acpmp.org! The new website is easier to navigate, more user-friendly, and features new updates to pages such as Patient Stories. Our goal with this new website is to provide our...

Inspire is a free and secure online support community in which patients connect with one another for support and information. ACPMP has been a partner with Inspire for the past 10 years and has cultivated a wonderful support community for appendix cancer and PMP patients with over 1,900 members! We are excited to share with you Inspire's new mobile app!...

The ACPMP Research Foundation is excited to announce that we have become official advocacy partners of the MyPART Network at the U.S. National Cancer Institute’s Center for Cancer Research! The My Pediatric and Adult Rare Tumor (MyPART) Network is a group of patients, family members, researchers, advocates, and healthcare providers who are working together to find treatments for childhood, teen,...

ACPMP celebrated #GivingTuesday 2019 by sharing videos from our Board of Directors and staff in the week leading up to it! Their stories will tug at your heartstrings when you learn how they all have been individually impacted by Appendix Cancer/PMP. We hope these videos inspired you, gave you hope, and showed you just how personal this fight truly is...

The ACPMP Research Foundation continues to follow with great interest the clinical research being conducted to identify appendiceal tumor characteristics against which novel drugs can be targeted to reduce, if not eliminate, disease.  We were pleased, therefore, with the recent addition to our website’s list of clinical trials of a currently recruiting Phase 1 clinical study of patients with solid...