New Patient Guide

As a new patient, here are some steps you can take right away:

Download our New Patient Guide

STEP 1: LEARN ABOUT AC/PMP

• View our FAQs: Get your questions answered about appendix cancer and PMP, particularly about diagnosis and treatment.  YOU are your own best advocate!
• Check out videos of our past educational events to learn more about these diseases and optimal treatment.
• Read ACPMP's information on appendix cancer and pseudomyxoma peritonei.
• Review ACPMP's list of recent research relating to appendix cancer and PMP.

STEP 2: FIND A SPECIALIST

• It is highly recommended that appendix cancer and PMP patients seek out a surgeon with extensive experience in treating these conditions before commencing treatment.
• Visit Find a Specialist to find a specialist near you, resources, considerations, and important questions to ask at your next visit.
• We have prepared a list of questions you may want to ask the physicians with whom you consult. Please view Questions for Specialists.
• Gather your medical records to prepare for your initial specialist visit.
• Consider consulting at least two specialists.

STEP 3: CONNECT WITH OTHERS

• Join the very active Facebook PMP Appendix Cancer Support Group to connect with other patients.
• View ACPMP's Helpful Links page to find other resources for assistance.

STEP 4: PARTICIPATE IN RESEARCH

• Join ACPMP's Appendix Cancer Patient Registry
• Review ACPMP's updated list of active clinical trials and discuss them with your physician.
• If you have an upcoming surgery or ascites drain, donate your excess tumor tissue to accelerate research by filling out a simple online consent form—Pattern.org takes care of the rest.
• Ask your physician about molecular profiling of your tumor to guide treatment and determine eligibility for clinical trials.

STEP 5: RECEIVE UPDATES

• Follow ACPMP on Facebook, Instagram, YouTube, BluSky, X, and LinkedIn.
• Receive regular updates from ACPMP with the latest news on appendix cancer and PMP by joining our mailing list.

STEP 6: TAKE ACTION

• Attend an educational event.
• Organize a fundraiser to benefit ACPMP or hold a Facebook Fundraiser.
• Volunteer for ACPMP.
• See if your employer will match your donation.
• Shop at the ACPMP shop.