We write today to share with you that Karolyn Lewandowski, ACPMP's Chief Operating Officer and General Counsel, is transitioning from her role with ACPMP after serving our community for nearly 14 years. Karolyn began volunteering for the ACPMP Research Foundation upon the organization’s formation in 2008 following her husband’s diagnosis of appendix cancer and pseudomyxoma peritonei (PMP) in late 2007....

Thank you to those of you who have supported the Appendix Cancer Pseudomyxoma Peritonei (ACPMP) Research Foundation throughout the year! We hope 2022 brings you good health, happiness, and the possibility of seeing you in person. At ACPMP, we believe it's always the right time to come together and support the greater good. We appreciate our amazing community doing just that:...

ACPMP Executive Director, Deborah Shelton, has over 20 years of experience providing legal counsel to clients navigating the complex regulations governing the testing and commercialization of FDA-regulated products, with a particular focus on pharmaceuticals and medical devices. Periodically provides insight on research topics of interest to our patient community. The Unfolding Promise Of cTDNA There are many promising scientific developments...

Dr. Andreana Holowatyj, Assistant Professor of Medicine at Vanderbilt University, is studying the impact of cancer, including appendix cancer, on reproductive health. She has a brief, confidential online survey (called the REACT Study). Dr. Holowatyj is a frequent collaborator with the ACPMP Research Foundation, and has served as a guest presenter for us --talking about the appendix cancer burden among adults...

The Appendix Cancer Survivorship Symposium was held on October 15, 2021 and was hosted by The Appendix Cancer Pseudomyxoma Peritonei (ACPMP) Research Foundation, Atrium Health Wake Forest Baptist, University of Chicago Medicine and University of Utah Huntsman Cancer Institute. This event was held virtually via Zoom and was free and open to all! We had over 400 registrations from 25...

The Appendix Cancer Pseudomyxoma Peritonei (ACPMP) Research Foundation has been honored with a Top-Rated Award for 2021 from GreatNonprofits! This is our fourth year in a row that we have received this award thanks to our community of supporters who share their stories. We appreciate all of your contributions, thank you! Stories about us from people like YOU help us make...

Running to Support ACPMP My name is Sarah Corrigan and my cousin Julia Rouse (age 37) is currently battling appendix cancer/PMP. I am fundraising and running on behalf of her and all who are battling this rare disease in the Maine marathon on Sunday, October 4, 2021 in Portland, Maine. We have raised over $5,400 so far for the ACPMP...

In another promising development for cancer patients, Foundation Medicine announced this week that it has partnered with Epic to integrate Foundation’s genomic sequencing program with Epic’s electronic medical record (EMR) system. This collaboration represents an exciting step for AC/PMP and other cancer patients by facilitating physicians’ capability of ordering, receiving, and reviewing results of the genomic sequencing of a patient’s...

  Today marks the first day of September which is bittersweet, as our first ever dedicated awareness month of August has officially come to a close. While the month of August has ended, please remember that awareness can and should be all year long! Appendix cancer is a rare cancer but it deserves recognition, funding, and research so that our...

We are pleased to report of a promising development for appendix cancer patients with a tumor identified as having a mismatch repair deficiency (or “dMMR”). This week, FDA granted accelerated approval for a drug to treat recurrent or advanced solid tumors having a dMMR for which patients have no satisfactory treatment options. Specifically, FDA has granted approval to GlaxoSmithKline’s drug...