It’s hard to believe this year marks the 15th annual Appendix Cancer/PMP Awareness Walk and Run. This event began on Father’s Day 2007, less than one year after the death of Frank “Dutch” Culbertson on July 22, 2006. As Father’s Day 2007 approached, Dutch’s wife Judy sought a positive way to commemorate the day with her children. She and...

Want to meet up with fellow appendix cancer/PMP patients and caregivers in YOUR local area? ACPMP is pleased to present “Appendix Cancer Allies,” a new program enabling patients and caregivers to connect locally and create community. ACPMP and members of our Patient Advisory Council will coordinate local gatherings, first virtually and eventually safely in person, for patients and caregivers to...

This week is Adolescent and Young Adult (AYA) Cancer Awareness week, April 5th - April 11th. Adolescent and Young Adult Cancer Awareness week was created to raise awareness about the unique challenges that AYA cancer survivors face each day and to show how their community can help. The Appendix Cancer Pseudomyxoma Peritonei (ACPMP) Research Foundation would like to share some...

Job Description – Staff Assistant The Appendix Cancer Pseudomyxoma Peritonei Research Foundation (ACPMP) has an opening for a part-time Staff Assistant to support day-to-day operations of this small non-profit organization.   Schedule: This is a 20 hour per week position, Monday through Friday during daytime hours Location: This position is fully remote; staff coordinates by phone, email and Zoom Compensation:...

Yesterday, in a news story titled “Appendix Cancer Striking Young Patients” Robert and Angela Adams share their experience regarding Robert’s recent appendix cancer diagnosis. Robert is currently seeking treatment at Vanderbilt and hopes to have CRS/HIPEC soon following chemotherapy. “Doctors are seeing an increase in the number of patients with appendix cancer. Many of the patients are younger.”[1] Recently the Appendix Cancer...

March is colorectal cancer awareness month. Colorectal cancer is the third most common cancer in the US, and the second leading cause of cancer death. It affects men and women of all racial and ethnic groups, and is most often found in people 50 years or older although incidence in those younger than 50 is on the rise.[1]. Appendix cancer...

RESEARCH. CURE. APPENDIX CANCER. Rare Disease Day | February 28, 2021  Appendix cancer is a rare disease often misdiagnosed, misunderstood, and under-researched.  Most patients diagnosed with appendix cancer may have even heard the words (including sometimes even by a physician) “well, at least it's nothing serious, it’s just your appendix.” False. Appendix cancer can be life-threatening and we must all...

CHECK OUT OUR RARE DISEASE DAY VIDEO HERE! Rare Disease Day is a global day of awareness that celebrates our collective strength and is observed on the last day of February every year. The goal each year is to inform and educate the general public and decision-makers about the life-altering impacts of rare diseases.   A rare disease is considered to...

SCIENTIFIC PEER REVIEW OF CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS’ RARE CANCERS RESEARCH PROGRAM FOR THE DEPARTMENT OF DEFENSE   The Congressionally Directed Medical Research Programs’ (CDMRP), Rare Cancers Research Program (RCRP) consumer advocate, Jeremy Kitzhaber, recently participated in the evaluation of research applications submitted to the RCRP. Jeremy Kitzhaber was nominated for participation in the program by the (ACPMP) Appendix Cancer Pseudomyxoma Peritonei Research Foundation. As...

For more information regarding COVID-19 recommendations and resources for appendix cancer and pseudomyxoma peritonei patients go to our other pages: COVID-19 Patient Information and/or COVID-19 Resources   General considerations: Two vaccines are currently being distributed in the United States through Emergency Use Authorization (EUA): the BNT162b2 (Pfizer) and mRNA-1273 (Moderna) mRNA COVID-19 vaccines. Both vaccines achieved 94-95% vaccine efficacy in the...